HB78 - Genetic Information Privacy Act Summary

• Requires written informed consent before collecting, analyzing, accessing, or disclosing genetic information, with specific consent form requirements for obtaining, retaining, and disclosing genetic data.

• Prohibits DNA sample collection and genetic analysis without written authorization from the sample source or representative, with exceptions for law enforcement, paternity determination, newborn screening, and anonymous research.

• Establishes that DNA samples and analysis results are the exclusive property of the person sampled and prohibits use for research or commercial purposes without consent, even in non-identifiable form.

• Restricts disclosure of genetic information and individual identity except for criminal investigations, paternity cases, court orders, informed consent, decedent medical diagnosis, body identification, and other legally authorized purposes.

• Creates criminal penalties including fines of $1,000-$10,000 for unlawful retention, $5,000-$50,000 for unlawful disclosure, civil damages for emotional and economic harm, and designates violations as Class A misdemeanors.