SJR94 Summary

• Designates May 2017 as "Cystic Fibrosis Awareness Month" in Alabama.

• Cystic fibrosis affects approximately 30,000 children and adults in the United States and nearly 70,000 worldwide, with over 400 living in Alabama.

• Caused by a defective gene producing abnormally thick mucus that clogs lungs and obstructs the pancreas, with a median survival age of 41 years.

• Alabama has two world-class CF treatment centers specializing in diagnosis and care of patients with the disease.

• Early diagnosis through infant blood screening and access to innovative treatments are critical components for improving quality and length of life for people with CF.