SB155 Summary: Lila's Law

• Establishes "Lila's Law" to prohibit discrimination against individuals with disabilities in accessing organ transplantation services and related medical care.

• Covered entities (healthcare providers, hospitals, transplant centers, and organ matching organizations) are prohibited from denying eligibility, services, referrals, or transplant list placement based solely on a person's mental or physical disability.

• Requires covered entities to make reasonable modifications to policies and procedures and provide auxiliary aids and services (interpreters, accessible materials, supported decision-making) during the organ transplant process unless doing so would fundamentally alter services or create undue burden.

• Allows physicians to consider a disability medically significant only after individualized evaluation, and establishes that inability to independently comply with post-transplant care is not medically significant if adequate support networks exist.

• Permits qualified individuals to bring civil actions in circuit court for injunctive or equitable relief, with courts required to schedule expedited hearings, while preserving additional remedies under the Americans with Disabilities Act.