AR HB1532

Creates an 8-member Arkansas Rare Disease Advisory Council within the Department of Health, including rare disease patients, caregivers, a geneticist, a Medicaid representative, and healthcare providers with rare disease expertise

Council must hold initial meeting within 90 days of enactment, meet monthly during the first year, and quarterly thereafter, with members serving 3-year terms

Directs the council to advise legislators and agencies on rare disease policy, conduct a first-year survey of patient needs, and make recommendations on improving Medicaid and private insurance coverage for diagnostics and treatments

Requires annual reports to the Governor and Legislative Council on council activities, funding status, and recommendations for addressing rare disease patient needs

Authorizes the council to solicit funds and establish protocols for emergency planning to ensure continuity of care for rare disease patients during disasters or public health emergencies