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CA ACR109
Concurrent Resolution
Status
Passed
8/21/2012
Primary Sponsor
Beth Gaines
Click for details
AI Summary
- Proclaims February 29, 2012, as Rare Disease Day in California
- Acknowledges that nearly 7,000 rare diseases affect almost 30 million Americans, with over 80 percent classified as ultra rare affecting fewer than a few thousand people each
- Notes that approximately 360 orphan drugs have been approved, leaving over 15 million Americans with rare diseases without disease-specific treatments
- Recognizes that patients and families with rare diseases struggle with obtaining timely diagnoses, limited treatment options, and access to reimbursement
- Supports the National Organization for Rare Disorders' nationwide observance of Rare Disease Day with the theme "Rare But Strong Together"
Legislative Description
Rare Disease Day.
Last Action
Chaptered by Secretary of State - Res. Chapter 82, Statutes of 2012.
8/21/2012
Committee Referrals
Rules2/17/2012
Full Bill Text
No bill text available