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CA SB1267

Bill

Status

Introduced

2/23/2012

Primary Sponsor

Alex Padilla

Click for details

Origin

Senate

2011-2012 Session

AI Summary

  • Establishes the Genetic Information Privacy Act, making genetic information a protected privacy right under the California Constitution and prohibiting obtaining, analyzing, retaining, or disclosing genetic information without written authorization from the individual.

  • Requires a separate written authorization for each disclosure, with authorization forms written in plain language, no smaller than 14-point type, dated and signed by the individual or authorized representative.

  • Imposes civil penalties of up to $1,000 for negligent violations and $1,000-$5,000 for willful violations, plus court costs; willful or negligent violations causing harm are misdemeanors punishable by fines up to $10,000, with additional liability for actual damages.

  • Exempts law enforcement officials, hospitals and physicians performing court-ordered tests, licensed health care professionals in medical emergencies, coroners and medical examiners, and newborn screening programs required by state or federal law.

  • Permits use of disaggregated and anonymized data collected before the act's enactment without authorization, and allows use of such data with written authorization if used for authorized purposes.

Legislative Description

Genetic Information Privacy Act.

Last Action

Held in committee and under submission.

5/24/2012

Committee Referrals

Appropriations4/30/2012
Judiciary4/9/2012
Rules2/23/2012

Full Bill Text

No bill text available