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CA SCR126
Concurrent Resolution
AI Summary
- Proclaims November 2014 as Adrenoleukodystrophy Awareness Month in California
- Recognizes X-linked adrenoleukodystrophy (X-ALD) as a genetic disorder affecting an estimated one in 20,000 boys (approximately 13,600 people in the United States)
- Acknowledges that X-ALD causes damage to myelin sheath in the brain, leading to adrenal insufficiency and neurological symptoms that can manifest in childhood (ages 4-10) or adulthood (ages 21-35)
- Notes that treatment options include adrenal hormone therapy, bone marrow transplantation, "Lorenzo's Oil," physical therapy, and newborn screening programs
- Honors Jeremy Hill, Jr. of Bakersfield and his family's efforts in fighting the disease, with November selected as awareness month to coincide with his birthday
Legislative Description
Adrenoleukodystrophy Awareness Month.
Last Action
Chaptered by Secretary of State. Res. Chapter 121, Statutes of 2014.
8/20/2014
Committee Referrals
Rules6/19/2014
Rules6/3/2014
Full Bill Text
No bill text available