Loading chat...

CA SB980

Bill

Status

Vetoed

9/25/2020

Primary Sponsor

Tom Umberg

Click for details

Origin

Senate

2019-2020 Session

AI Summary

  • Establishes the Genetic Information Privacy Act requiring direct-to-consumer genetic testing companies and related entities to provide consumers with clear privacy policies and obtain express consent before collecting, using, maintaining, or disclosing genetic data.

  • Mandates separate express consent for specific uses including primary testing, sample storage, secondary uses, third-party transfers, and marketing based on genetic data, with easily accessible revocation mechanisms.

  • Requires companies to destroy biological samples within 30 days of consent revocation, implement reasonable security procedures, and provide consumers access to their genetic data and ability to delete accounts.

  • Prohibits disclosure of genetic data to health insurance, life insurance, disability insurance, or employment-related entities without specific exceptions for entities not primarily engaged in those functions.

  • Imposes civil penalties of up to $1,000 for negligent violations and $1,000 to $10,000 for willful violations, with enforcement by the Attorney General, district attorneys, county counsel, or city attorneys.

Legislative Description

Privacy: genetic testing companies.

Last Action

In Senate. Consideration of Governor's veto pending.

9/25/2020

Committee Referrals

Appropriations8/6/2020
Privacy and Consumer Protection6/29/2020
Appropriations5/28/2020
Judiciary2/20/2020
Rules2/11/2020

Full Bill Text

No bill text available