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CA SB980
Bill
AI Summary
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Establishes the Genetic Information Privacy Act requiring direct-to-consumer genetic testing companies and related entities to provide consumers with clear privacy policies and obtain express consent before collecting, using, maintaining, or disclosing genetic data.
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Mandates separate express consent for specific uses including primary testing, sample storage, secondary uses, third-party transfers, and marketing based on genetic data, with easily accessible revocation mechanisms.
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Requires companies to destroy biological samples within 30 days of consent revocation, implement reasonable security procedures, and provide consumers access to their genetic data and ability to delete accounts.
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Prohibits disclosure of genetic data to health insurance, life insurance, disability insurance, or employment-related entities without specific exceptions for entities not primarily engaged in those functions.
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Imposes civil penalties of up to $1,000 for negligent violations and $1,000 to $10,000 for willful violations, with enforcement by the Attorney General, district attorneys, county counsel, or city attorneys.
Legislative Description
Privacy: genetic testing companies.
Last Action
In Senate. Consideration of Governor's veto pending.
9/25/2020