CA SCR87

Recognizes and proclaims June 24, 2020, as Cystinuria Awareness Day in California to promote awareness of the disease and support medical research centers.

Cystinuria is a rare genetic disorder that prevents the body from regulating amino acid concentrations, causing cystine stones in the kidney, ureter, and bladder, with most patients developing symptoms before age 20.

The American Urological Association recognizes Cystinuria as the most common monogenic kidney stone disorder, affecting approximately one in every 10,000 Americans, with 42 known cases in California.

Cystinuria patients often experience chronic pain, recurrent urinary tract infections, require multiple surgeries, and face life-threatening complications including kidney failure and need for transplants.

Calls on California residents and interest groups to observe Cystinuria Awareness Day and notes that doctors at the University of California, San Francisco, have world-leading expertise in treating the disease.