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CA AR119
Resolution
Status
Passed
6/29/2022
Primary Sponsor
Marc Levine
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AI Summary
- Proclaims June 23, 2022, as X-Linked Hypophosphatemia Awareness Day and June 2022 as XLH Awareness Month in California
- Recognizes XLH as a rare genetic disorder affecting approximately 1 in 20,000 newborns that impacts muscular, skeletal, auditory, and nervous systems throughout a person's lifetime
- Acknowledges that XLH patients and families face challenges including delayed diagnoses, limited treatment options, and affordability barriers
- Notes that XLH is currently incurable but ongoing research continues to explore genetic mutations with hope for future treatment development
- Supports the XLH Network, Inc., a nonprofit organization providing support to patients and caregivers affected by the disease
Legislative Description
Relative to X-Linked Hypophosphatemia awareness.
Last Action
Read. Adopted. (Ayes 78. Noes 0.).
6/29/2022
Committee Referrals
Rules6/23/2022
Full Bill Text
No bill text available