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CA AR106
Resolution
Status
6/26/2024
Primary Sponsor
Lisa Calderon
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AI Summary
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Designates October 2024 as Rett Syndrome Awareness Month in California
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Acknowledges that Rett syndrome is a rare genetic neurological disorder affecting primarily females, with one child born with the condition every two hours
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Recognizes that symptoms typically appear between 6-18 months of age and lead to permanent impairments including loss of speech, seizures, mobility loss, and irregular breathing patterns
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Notes recent scientific breakthroughs including the 1999 discovery of the causative gene, 2007 research suggesting symptom reversibility, and FDA-approved treatments currently in development
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Calls for continued funding and awareness efforts to advance Rett syndrome research and find a cure
Legislative Description
Relative to Rett Syndrome Awareness Month.
Last Action
Read. Adopted.
6/26/2024