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CA AR106

Resolution

Status

Passed

6/26/2024

Primary Sponsor

Lisa Calderon

Click for details

Origin

State Assembly

2023-2024 Session

AI Summary

  • Designates October 2024 as Rett Syndrome Awareness Month in California

  • Acknowledges that Rett syndrome is a rare genetic neurological disorder affecting primarily females, with one child born with the condition every two hours

  • Recognizes that symptoms typically appear between 6-18 months of age and lead to permanent impairments including loss of speech, seizures, mobility loss, and irregular breathing patterns

  • Notes recent scientific breakthroughs including the 1999 discovery of the causative gene, 2007 research suggesting symptom reversibility, and FDA-approved treatments currently in development

  • Calls for continued funding and awareness efforts to advance Rett syndrome research and find a cure

Legislative Description

Relative to Rett Syndrome Awareness Month.

Last Action

Read. Adopted.

6/26/2024

Committee Referrals

Rules6/17/2024

Full Bill Text

No bill text available