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CA SB1099

Bill

Status

Passed

9/25/2024

Primary Sponsor

Janet Nguyen

Click for details

Origin

Senate

2023-2024 Session

AI Summary

  • Requires the State Department of Public Health to generate annual reports starting July 1, 2026, including data on residual screening specimens stored, inheritable conditions identified, research projects utilizing specimens, and published studies using biospecimens.

  • Mandates reports be submitted to the Legislature for five consecutive years and made publicly available on the department's website, with continued posting after the fifth report.

  • Adds reporting costs to fee guidelines that researchers must pay to cover data linkage, retrieval, processing, and other administrative expenses associated with research activities.

  • Creates the Cord Blood Banking Fund as a special fund in the State Treasury to receive fees from approved researchers for umbilical cord blood samples and pregnancy/newborn blood samples used in research.

  • Allows fees collected from researchers to be used for reporting, data management, blood collection, storage, retrieval, processing, inventory, and shipping of blood samples.

Legislative Description

Newborn screening: genetic diseases: blood samples collected.

Last Action

Chaptered by Secretary of State. Chapter 598, Statutes of 2024.

9/25/2024

Committee Referrals

Appropriations6/26/2024
Health5/20/2024
Appropriations4/23/2024
Health2/21/2024
Rules2/13/2024

Full Bill Text

No bill text available