CA ACR132

Designates February 28, 2026, as Rare Disease Day in California to improve awareness, encourage early diagnosis, and support efforts to develop treatments and cures

Over 30 million Americans are living with at least one of more than 10,000 known rare diseases, defined as conditions affecting fewer than 200,000 individuals in the United States

Approximately 90% of rare diseases lack FDA-approved treatments, despite more than 1,100 drugs being approved for orphan indications

References California's 2024 establishment of the Jacqueline Marie Zbur Rare Disease Advisory Council to raise awareness and recommend legislative improvements for care access

Notes that nearly 200 rare disease drugs and treatments have originated in California through the state's life sciences sector