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CA SB1047
Bill
Status
Introduced
2/12/2026
Primary Sponsor
Benjamin Allen
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AI Summary
- Extends California's neurodegenerative disease registry program from January 1, 2028 to January 1, 2030
- Adds frontotemporal degeneration (FTD) and "other dementias" to the list of reportable neurodegenerative diseases
- Clarifies that amyotrophic lateral sclerosis (ALS), Alzheimer's disease, multiple sclerosis, and Huntington's disease are explicitly included in mandatory reporting requirements
- Requires hospitals, physicians, and healthcare providers to report all diagnosed cases to the State Department of Public Health
- Maintains civil penalties of up to $500 per day for willful refusal to grant access to patient records for the registry
Legislative Description
Neurodegenerative disease registry program.
Last Action
Set for hearing March 25.
3/11/2026
Committee Referrals
Health2/26/2026
Rules2/12/2026
Full Bill Text
No bill text available