CO SJR014

Declares February 28, 2026, as Rare Disease Day in Colorado to raise awareness of rare diseases

More than 500,000 Coloradans and 30 million Americans (1 in 10 people) live with one of over 10,000 identified rare diseases

Direct medical costs for rare disease patients are 3-5 times higher than for other patients, totaling an estimated $400 billion nationally and $12 billion in Colorado annually

Fewer than 5% of the 10,000 known rare diseases have an FDA-approved treatment, and 30% of children with rare diseases will not live to age five

Copies of the resolution will be sent to members of the Colorado Rare Disease Advisory Council