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CT SB00465

Bill

Status

Passed

6/17/2013

Primary Sponsor

Public Health Committee

Click for details

Origin

Senate

2013 General Assembly

AI Summary

  • Adds adrenoleukodystrophy screening to Connecticut's newborn screening program, effective upon development of validated testing methodology and FDA approval or availability of necessary reagents.

  • Requires institutions caring for newborns to administer the adrenoleukodystrophy test using dried blood spots once technical and regulatory requirements are met.

  • Maintains existing exemption allowing parents to object to screening tests based on religious beliefs and practices.

  • Establishes that the Commissioner of Public Health will administer the program and direct identified cases to appropriate specialty centers consistent with confidentiality requirements.

Legislative Description

An Act Concerning Newborn Screening For Adrenoleukodystrophy.

Last Action

Signed by the Governor

7/2/2013

Committee Referrals

Finance, Revenue and Bonding5/8/2013
Appropriations4/24/2013
Public Health1/23/2013

Full Bill Text

No bill text available