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CT SB00285

Bill

Status

Introduced

2/26/2014

Primary Sponsor

Committee on Children

Click for details

Origin

Senate

2014 General Assembly

AI Summary

  • Adds screening for globoid cell leukodystrophy (Krabbe disease) to required newborn screening tests, effective January 1, 2015.

  • Requires all newborn institutions to administer the screening test as soon after birth as medically appropriate.

  • Removes outdated language regarding critical congenital heart disease screening implementation date, keeping that test as a requirement.

  • Maintains existing exemptions allowing parents to decline testing if it conflicts with their religious tenets and practices.

  • Commissioner of Public Health continues to administer the newborn screening program and direct identified infants to appropriate specialty centers for treatment.

Legislative Description

An Act Concerning Newborn Screening For Krabbe Disease.

Last Action

Public Hearing 03/06

2/28/2014

Committee Referrals

Joint Committee on Children2/26/2014

Full Bill Text

No bill text available