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CT HB05132

Bill

Official Source

Status

Introduced

2/9/2016

Primary Sponsor

Public Health Committee

Click for details

Origin

House of Representatives

2016 General Assembly

AI Summary

  • Adds Pompe disease to the list of conditions requiring newborn screening in Connecticut, effective October 1, 2016
  • Requires screening tests for Pompe disease to be administered to all newborn infants in institutional care as soon after birth as medically appropriate
  • Maintains existing newborn screening requirements for other conditions including cystic fibrosis, severe combined immunodeficiency disease, and critical congenital heart disease
  • Allows parents to opt out of testing and treatment if it conflicts with their religious tenets and practices
  • Directs the Commissioner of Public Health to implement the requirements through regulatory action

Legislative Description

An Act Concerning Newborn Screening For Pompe Disease.

Last Action

Public Hearing 02/16

2/11/2016

Committee Referrals

Public Health2/9/2016

Full Bill Text

No bill text available