CT HB07282

Requires newborn screening for spinal muscular atrophy effective January 1, 2020, in addition to existing screenings for cystic fibrosis and critical congenital heart disease.

Mandates institutions caring for newborns administer screening tests as soon after birth as medically appropriate, with results entered into the newborn screening system.

Sets minimum fees charged to institutions at $98 to cover all expenses of the comprehensive screening program including testing, tracking, and treatment.

Requires institutions to report any confirmed cases of cytomegalovirus from newborn screening to the Department of Public Health in a prescribed form and manner.

Exempts infants whose parents object to testing or treatment based on religious tenets and practice from the screening requirements.