CT HB06672

University of Connecticut Health Center must establish an endometriosis data and biorepository program by January 1, 2024, in collaboration with an independent nonprofit biomedical research institution to enable research on early detection and therapeutic strategies for endometriosis.

The program shall collect endometrial tissue specimens, blood and urine samples, and clinical data from patients with endometriosis and control patients without endometriosis using coded identifiers and phenotypic data.

The program must ensure diverse representation in sample collection from underrepresented populations including African American and Black persons, Latino/Latina/Latinx persons, Puerto Rican persons, transgender and gender diverse persons, and persons with disabilities.

The program shall create opportunities for collaborative research among state institutions on endometriosis pathogenesis, discovery of diagnostic biomarkers, novel therapeutics, and improved medical and surgical interventions.

University of Connecticut Health Center must submit annual reports to the joint standing committee on public health beginning January 1, 2025, regarding program implementation.