CT HB05367

Commissioner of Social Services shall provide Medicaid coverage for rapid whole genome sequencing of critically ill infants (birth to 12 months) enrolled in Medicaid and treated in neonatal or pediatric intensive care units, effective July 1, 2024, within available appropriations.

Health care providers receiving reimbursement must certify that genetic data is used only for diagnosis and treatment, protected under HIPAA, and not used in research without express parental consent.

Commissioner shall establish evidence-based medical necessity criteria for the sequencing coverage, including symptoms suggesting broad differential diagnosis, written provider determination of necessity, and complex illness of unknown etiology involving multiple organ systems or congenital anomalies.

A working group appointed by joint standing committee chairs shall study eliminating or reducing the Katie Beckett Waiver Program waiting list and establishing priority placements based on illness and life expectancy, with a report due by February 15, 2025.

Commissioner of Social Services shall study the feasibility of expanding Medicaid coverage for diapers to children birth to age three where medically necessary and file a report with recommendations by January 1, 2025.