CT HB05128

Establishes that Connecticut consumers have a property right in their biological samples (tissue, blood, saliva) and genetic testing results provided to direct-to-consumer genetic testing companies, including exclusive control over collection, use, retention, disclosure, and destruction

Requires companies to obtain express consent before collecting, using, or disclosing genetic data, with separate consent required for transfers to third parties, secondary uses beyond the primary testing purpose, and retention of biological samples after testing

Prohibits disclosure of genetic data to employers, health/life/long-term care insurers, insurance data providers, and third parties intending to use data for marketing or targeted advertising

Mandates companies implement reasonable security measures and provide consumers with processes to access their data, delete genetic data, destroy biological samples, and revoke consent for research use

Violations constitute unfair or deceptive trade practices under Connecticut General Statutes section 42-110b, with an effective date of October 1, 2026