DE SCR41

Recognizes the fight of Baby Avery Canahuati, a 5-month-old diagnosed with Spinal Muscular Atrophy (SMA) who received national attention through the "Bucket List" initiative

Acknowledges that SMA kills more infants and toddlers than any other genetic disease and affects voluntary muscle movement including crawling, walking, head and neck control, and swallowing

Notes that between 1 in 6,000 to 1 in 10,000 children are born with SMA, affecting an estimated 10,000 to 25,000 people in the United States, making it one of the most common rare diseases

States that one in every 50 people carries the SMA-causing gene, representing approximately 6 million carriers in the United States

Calls for raising awareness about Spinal Muscular Atrophy in Delaware and highlights that SMA research is significantly underfunded despite the disease having unique opportunities for therapeutic development