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DE HB214
Bill
Status
5/7/2014
Primary Sponsor
Melanie Smith
Click for details
AI Summary
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Creates a new Chapter 8B in Title 16 of Delaware Code requiring hospitals, physicians, health care providers, nurse midwives, and genetic counselors to provide parents with Department-prepared information upon receipt of a positive Down Syndrome test result (prenatal or postnatal).
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Requires the Department to make available evidence-based written information about Down Syndrome reviewed by medical experts and national organizations, including physical, developmental, educational, psychosocial outcomes, life expectancy, clinical course, intellectual and functional development, and treatment options.
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Mandates the Department provide contact information for first call programs, support services, hotlines, resource centers, and national and local Down Syndrome organizations to healthcare providers and, at the Department's discretion, to parents who receive positive test results.
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Requires the Department to meet annually with representatives of the Down Syndrome Association of Delaware to ensure information remains current and evidence-based.
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Mandates the Department submit an annual report by January 31 to the Joint Finance Committee Co-Chairs detailing distribution of required information to healthcare providers and parents.
Legislative Description
An Act To Amend Title 16 Of The Delaware Code Relating To Information On Down Syndrome.
Last Action
Signed by Governor
5/7/2014