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DE SCR52
Concurrent Resolution
Status
Engrossed
3/23/2016
Primary Sponsor
Bethany Hall-Long
Click for details
AI Summary
- Designates March 23, 2016, as "Rare Disease Day" in the State of Delaware
- Recognizes that nearly 7,000 rare diseases affect almost 30 million Americans, with thousands of Delaware residents among those affected
- Notes that while over 450 drugs and biologics have been approved for rare disease treatment, millions of Americans still lack approved treatments for their rare diseases
- Acknowledges that patients and families affected by rare diseases often face diagnosis delays, difficulty finding medical experts, and lack of access to treatments or support services
- Aligns Delaware's observance with a nationwide "Rare Disease Day" organized by the National Organization for Rare Disorders (NORD)
Legislative Description
Designating March 23, 2016, As "rare Disease Day" In The State Of Delaware.
Last Action
Passed in House by Voice Vote
3/24/2016
Full Bill Text
No bill text available