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DE SCR9
Concurrent Resolution
Status
Engrossed
3/19/2015
Primary Sponsor
Bethany Hall-Long
Click for details
AI Summary
- Designates March 19th, 2015, as "Rare Disease Day" in Delaware
- Recognizes that nearly 7,000 rare diseases affect approximately 30 million Americans, with nearly one in 10 Americans affected
- Acknowledges that while over 450 drugs have been approved for rare disease treatment, millions of Americans still lack approved treatments for their conditions
- Notes that individuals and families with rare diseases often face diagnosis delays, difficulty finding medical experts, and lack of access to treatments or services
- Recognizes Delaware residents affected by rare diseases and their participation in the nationwide observance organized by the National Organization for Rare Disorders (NORD)
Legislative Description
Designating March 19th, 2015, As "rare Disease Day" In The State Of Delaware.
Last Action
Passed in House by Voice Vote
3/19/2015
Full Bill Text
No bill text available