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DE HCR11

Concurrent Resolution

Official Source

Status

Engrossed

3/15/2017

Primary Sponsor

Stephen Smyk

Click for details

Origin

House of Representatives

149th General Assembly

AI Summary

  • Proclaims March 17, 2017 as "Phelan-McDermid Syndrome Awareness Day" in Delaware
  • Phelan-McDermid Syndrome (PMS) is a genetic condition caused by deletion of the terminal end of chromosome 22 or mutation of the SHANK3 gene
  • PMS symptoms include intellectual disabilities, delayed or absent speech, autism spectrum disorder symptoms, low muscle tone, motor delays, and epilepsy
  • Almost 1,400 cases of PMS have been identified worldwide since the first case was described in 1985, with many cases remaining undiagnosed
  • Directs that a copy of the resolution be forwarded to the Phelan-McDermid Syndrome Foundation, which advocates for affected families across 40 countries and supports research to improve treatment options

Legislative Description

Proclaiming March 17, 2017 As "phelan-mcdermid Syndrome Awareness Day" In Delaware.

Last Action

Passed By Senate. Votes: 20 YES 1 ABSENT

3/15/2017

Full Bill Text

No bill text available