DE HCR65

Recognizes March 28, 2018, as "Rare Disease Day" in the State of Delaware.

Nearly 7,000 diseases and conditions are considered rare in the United States, each affecting fewer than 200,000 Americans, with rare diseases collectively affecting almost 30 million Americans.

While the FDA has approved more than 450 drugs and biologics for treating rare diseases, millions of Americans with rare diseases still lack approved treatments.

Thousands of Delaware residents are affected by rare diseases, with nearly one in 10 Americans having a rare disease.

Acknowledges that patients and families affected by rare diseases often experience diagnosis delays, difficulty finding medical experts, and lack of access to treatments and services.