DE SCR59

Proclaims May 2018 as Cystic Fibrosis Awareness Month in Delaware

Cystic fibrosis affects approximately 30,000 children and adults in the United States and over 70,000 worldwide, with about 1,000 new cases diagnosed annually

Median survival age for cystic fibrosis patients has increased to 37 years due to advancements in research and medical treatments, compared to few children surviving to elementary school in the 1950s

FDA approved lumacaftor/ivacaftor in 2016, a new generation treatment targeting faulty CFTR proteins, for an additional 2,400 children in the U.S.

Directs that a copy of the resolution be presented to the Cystic Fibrosis Foundation