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DE SR21
Resolution
Status
Engrossed
6/20/2018
Primary Sponsor
Nicole Poore
Click for details
AI Summary
- Hypophosphatemic rickets is a rare hereditary disorder causing bones to become soft and bend easily due to low blood phosphate levels
- Symptoms typically begin in infancy or early childhood and range from no noticeable signs to severe manifestations including leg bowing, bone deformities, bone pain, and short stature
- X-linked hypophosphatemic rickets is the most common hereditary form, affecting approximately 1 in 20,000 newborns
- With appropriate management, people with hypophosphatemic rickets can expect normal health and lifespan
- Delaware State Senate promotes awareness of hypophosphatemic rickets and recognition that families affected by less widely-known rare diseases bear significant burden in funding research
Legislative Description
Promoting Awareness Of The Rare Disease Hypophosphatemic Rickets.
Last Action
Passed By Senate. Votes: 20 YES 1 ABSENT
6/20/2018
Full Bill Text
No bill text available