Loading chat...

DE HCR19

Concurrent Resolution

Status

Engrossed

3/26/2019

Primary Sponsor

Paul Baumbach

Click for details

Origin

House of Representatives

150th General Assembly

AI Summary

  • Designates March 26, 2019, as "Rare Disease Day" in the State of Delaware.

  • Acknowledges that nearly 7,000 rare diseases exist in the United States, each affecting fewer than 200,000 Americans, with rare diseases collectively affecting almost 30 million Americans.

  • Notes that while the FDA has approved more than 450 drugs and biologics for rare disease treatment, millions of Americans with rare diseases lack approved treatment options.

  • Recognizes that nearly one in 10 Americans have rare diseases, meaning thousands of Delaware residents are affected by these conditions.

  • Supports participation in the National Organization for Rare Disorders' nationwide observance of Rare Disease Day on February 28, 2019.

Legislative Description

Designating March 26, 2019, As "rare Disease Day" In The State Of Delaware.

Last Action

Passed By Senate. Votes: 21 YES

3/26/2019

Full Bill Text

No bill text available