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DE HCR73

Concurrent Resolution

Status

Engrossed

1/30/2020

Primary Sponsor

Paul Baumbach

Click for details

Origin

House of Representatives

150th General Assembly

AI Summary

  • Designates February 29, 2020, as "Rare Disease Day" in Delaware
  • Nearly 7,000 rare diseases exist in the United States, each affecting fewer than 200,000 Americans, but collectively affect almost 30 million Americans
  • Approximately one in 10 Americans have rare diseases, meaning thousands of Delaware residents are affected
  • While over 450 drugs and biologics have been approved for rare disease treatment, millions of Americans still lack approved treatments for their conditions
  • Recognizes the National Organization for Rare Disorders' nationwide observance and the participation of patients, caregivers, medical professionals, and researchers in Delaware

Legislative Description

Designating February 29, 2020, As "rare Disease Day" In The State Of Delaware.

Last Action

Passed By Senate. Votes: 21 YES

1/30/2020

Full Bill Text

No bill text available