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DE HCR47
Concurrent Resolution
Status
Engrossed
1/27/2022
Primary Sponsor
Paul Baumbach
Click for details
AI Summary
- Designates February 28, 2022, as "Rare Disease Day" in Delaware
- Recognizes that nearly 7,000 rare diseases affect approximately 30 million Americans, with thousands of Delaware residents affected since nearly one in 10 Americans have rare diseases
- Acknowledges that while over 450 drugs and biologics have been FDA-approved for rare disease treatment, millions of Americans with rare diseases still lack approved treatments
- Highlights challenges faced by patients and families including diagnosis delays, difficulty finding medical experts, and lack of access to treatments and support services
- Notes participation in the nationwide observance organized by the National Organization for Rare Disorders (NORD) by patients, caregivers, medical professionals, researchers, and orphan product developers
Legislative Description
Designating February 28, 2022, As "rare Disease Day" In The State Of Delaware.
Last Action
Passed By Senate. Votes: 20 YES 1 ABSENT
1/27/2022
Full Bill Text
No bill text available