DE SCR187

Affirms the importance of increasing awareness of cerebral palsy and the need for a statewide cerebral palsy registry in Delaware.

Recognizes that cerebral palsy affects approximately 1 in 345 children in the United States and is the most common motor disability in children, with nearly one million people living with the condition.

Notes that 75% of individuals with cerebral palsy have one or more additional developmental disabilities, including epilepsy, intellectual disability, autism, or visual impairment.

States that disease registries can facilitate quality improvement initiatives, research endeavors, and provide population-level data for physicians and researchers to understand clinical outcomes and evaluate healthcare technologies.

Highlights that while cerebral palsy registries exist in Australia and Europe, there are currently no comprehensive registries in the United States or at the state level.