DE SCR7

Designates February 28, 2023, as "Rare Disease Day" in Delaware, coinciding with the National Organization for Rare Disorders (NORD) nationwide observance

Nearly 7,000 diseases are considered rare in the U.S. (each affecting fewer than 200,000 people), collectively impacting approximately 30 million Americans

Over 450 drugs and biologics have been approved by the FDA for rare disease treatment, yet millions of Americans still have rare diseases with no approved treatment options

Highlights Lissencephaly as an example of a rare disease, with fewer than 1,000 diagnosed individuals worldwide

Sponsored on behalf of all Senators and Representatives in the 152nd General Assembly