DE HCR10

Designates February 28, 2025, as "Rare Disease Day" in Delaware

Nearly 7,000 rare diseases exist, each affecting fewer than 200,000 Americans, with only about 500 having approved treatments

Approximately 30 million Americans are affected by rare diseases collectively, including thousands of Delaware residents (nearly 1 in 10 Americans)

Delaware established a Rare Disease Advisory Council in July 2023 (through SB 55) to raise awareness and make policy recommendations for improving patient access to health care services

Highlights specific rare diseases including Lissencephaly (affecting fewer than 1,000 people worldwide) and Ehlers-Danlos Syndrome as examples of conditions impacting residents