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DE SR12
Resolution
Status
6/17/2025
Primary Sponsor
Kyra Hoffner
Click for details
AI Summary
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Designates September 21-28, 2025, as "Frontotemporal Degeneration Awareness Week" in Delaware, coinciding with World FTD Awareness Week
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Frontotemporal Degeneration (FTD) is a terminal, incurable neurodegenerative disease affecting the brain's frontal and temporal lobes, causing impairments to speech, personality, behavior, and motor skills
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FTD primarily strikes people between ages 45-64, takes an average of 3.6 years to diagnose, and has a life expectancy of 7-13 years after symptoms begin
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FTD represents 5-15% of all dementia cases and is the most common form of dementia for people under 60, with care costs approximately double those of Alzheimer's disease
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Approximately 40% of FTD cases have a family history, with about half of inherited cases linked to mutations in specific genes including Progranulin, C9orf72, and Tau/MAPT
Legislative Description
Designating September 21-28, 2025, As Frontotemporal Degeneration Awareness Week In The State Of Delaware.
Last Action
Passed By Senate. Votes: 21 YES
6/17/2025