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FL S0420
Bill
AI Summary
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Classifies personal identifying information of donors to the Florida Center for Brain Tumor Research's central repository and registry as confidential and exempt from public records requirements.
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Allows disclosure of exempt information to researchers who submit an institutional review board-approved research plan, sign a confidentiality agreement, maintain confidentiality, and destroy records after research concludes.
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Extends the public records exemption's sunset date from October 2, 2011 to October 2, 2016, subject to the Open Government Sunset Review Act.
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Establishes a legislative finding that protecting donor privacy is necessary to encourage participation in the brain tumor registry and repository, which aids research into treatment and cures.
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Takes effect July 1, 2011.
Legislative Description
OGSR/Florida Center for Brain Tumor Research
Last Action
Read 2nd time -SJ 590
4/29/2011