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FL S7000
Bill
AI Summary
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Amends s. 381.8531, F.S. to make personal identifying information of donors to the Florida Center for Brain Tumor Research's central repository and registry confidential and exempt from public records requirements.
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Allows disclosure of confidential information to researchers who submit an institutional review board-approved research plan, sign a confidentiality agreement, maintain confidentiality, and destroy records after research concludes.
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Extends the sunset review date from October 2, 2011 to October 2, 2016, subjecting the exemption to the Open Government Sunset Review Act.
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Establishes legislative findings that privacy protections are necessary to encourage specimen donations, facilitate brain tumor research and treatment development, and protect patients from potential defamation or reputational harm.
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Takes effect July 1, 2011.
Legislative Description
OGSR/Donor Personal Identifying Information
Last Action
Submit as committee bill by Health Regulation (SB 420)
1/12/2011