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FL S2040
Resolution
Status
1/19/2012
Primary Sponsor
John Thrasher
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AI Summary
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Recognizes Jimbo and Candi Fisher and their organization Kidz1stFund for efforts to raise awareness and find a cure for Fanconi anemia (FA), a genetic disease diagnosed in their youngest son, Ethan.
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Notes that FA affects approximately 1 in 131,000 children equally across genders and ethnic groups, reducing average life expectancy to 24.7 years, with symptoms ranging from no manifestation to short stature, organ defects, and bone marrow failure.
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Identifies that FA is often undiagnosed or misdiagnosed due to lack of physician and public awareness, and that FA patients cannot tolerate standard chemotherapy and radiation treatments used for other cancers.
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States that bone marrow or cord blood transplant is the primary treatment for FA's bone marrow failure complications, with 70 percent of patients lacking family donors and depending on the National Marrow Donor Program registry of over 14 million donors.
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Expresses gratitude for the C.W. "Bill" Young Cell Transplantation Program and acknowledges that FA research has advanced understanding and treatment of various cancers including ovarian cancer, leukemia, lymphoma, and multiple myeloma.
Legislative Description
Kidz1stFund/Jimbo and Candi Fisher/Fanconi Anemia
Last Action
Adopted, companion bill(s) passed, see HR 9031 (Adopted) -SJ 322
2/7/2012