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FL H9085
Resolution
Status
Introduced
4/10/2014
Primary Sponsor
Katie Edwards
Click for details
AI Summary
- Designates April 2014 as "Rare Disease Month" in the State of Florida
- Notes that approximately 30 million Americans (nearly one in ten) live with a rare disease, defined as affecting fewer than 200,000 Americans
- Identifies approximately 6,800 rare diseases recognized by the National Institutes of Health, with half affecting children
- Cites growth in pharmaceutical treatments from 10 developed before the 1983 Orphan Drug Act to more than 450 currently in development
- Acknowledges that Floridians with rare diseases and their families deserve state support and recognition
Legislative Description
Rare Disease Month
Last Action
Adopted by Publication
4/21/2014
Full Bill Text
No bill text available