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FL H9093
Resolution
Status
Introduced
4/13/2015
Primary Sponsor
Katie Edwards
Click for details
AI Summary
- Designates April 2015 as "Rare Disease Month" in the State of Florida
- Identifies that approximately 30 million Americans (nearly one in ten) live with rare diseases, defined as diseases affecting fewer than 200,000 Americans
- Notes that approximately 6,800 rare diseases are recognized by the National Institutes of Health, with half affecting children
- Highlights that more than 450 pharmaceutical treatments for rare diseases are currently in development, compared to only 10 treatments developed in the decade before the 1983 Orphan Drug Act
- Acknowledges that Florida citizens stand to support Floridians living with rare diseases and their families
Legislative Description
Rare Disease Month
Last Action
Adopted by Publication
4/24/2015
Full Bill Text
No bill text available