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FL S1608
Resolution
AI Summary
- Raises awareness of Evans syndrome, a rare autoimmune disorder affecting 1 in 1 million people where the immune system attacks red blood cells, white blood cells, and platelets.
- Describes how the disease causes reduced oxygen levels leading to exhaustion, impaired infection-fighting ability, and dangerous bleeding risks due to impeded blood clotting.
- Notes that many physicians are unfamiliar with Evans syndrome, no cure exists, and no ongoing research is being conducted into possible causes or treatments.
- Indicates chemotherapy coupled with biweekly platelet checks is the current standard treatment, with each chemotherapy round costing $25,000 or more.
- Expresses that awareness efforts are needed to encourage research, improve diagnosis and treatment, and eventually identify a cure.
Legislative Description
Evans Syndrome Awareness
Last Action
Adopted
4/1/2015
Full Bill Text
No bill text available