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FL S0390
Bill
AI Summary
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Adds X-linked myotubular myopathy to the list of conditions qualifying as a "developmental disability" under Florida law, joining intellectual disability, cerebral palsy, autism, spina bifida, Down syndrome, Phelan McDermid syndrome, and Prader-Willi syndrome
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Defines X-linked myotubular myopathy as a diagnosed, inherited genetic neuromuscular disorder characterized by muscle weakness, diminished muscle tone (hypotonia), feeding difficulties, ophthalmoplegia, areflexia, scoliosis, joint deformities, or severe breathing difficulties
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Individuals with this condition who manifest symptoms before age 18 and have a substantial, continuing handicap would qualify for services through Florida's developmental disabilities programs
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Effective date of July 1, 2019
Legislative Description
X-linked Myotubular Myopathy
Last Action
Died in Health Policy
5/3/2019