FL H1481

Screening providers must notify primary care physicians and the Department of Health when newborns or infants are detected carrying sickle cell hemoglobin variants for inclusion in a registry.

Primary care physicians must provide parents and guardians with information about the availability and benefits of genetic counseling.

Department of Health shall contract with a community-based sickle cell disease center to establish and maintain a registry tracking sickle cell disease outcome measures, with parents/guardians able to request removal.

The Agency for Health Care Administration must conduct a biennial review of sickle cell disease medications, treatments, and services for Medicaid recipients and submit reports to the Governor, Legislature, and specified entities starting November 1, 2024.

Appropriates $250,000 to the Agency for Health Care Administration and $1,082,159 to the Department of Health for fiscal year 2023-2024, along with five full-time positions, effective July 1, 2023.