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FL H8049
Resolution
Status
Introduced
4/18/2023
Primary Sponsor
Adam Anderson
Click for details
AI Summary
- Recognizes February 28, 2023, as "Rare Disease Day" in Florida
- Notes that nearly 7,000 rare diseases affect fewer than 200,000 Americans each, but collectively impact nearly 30 million Americans, with 50 percent being children
- Highlights that the FDA has approved treatments for more than 1,000 rare disease indications, but millions of Americans with rare diseases lack approved treatments
- Acknowledges that Florida established the Rare Disease Advisory Council in 2021 and is home to leading academic institutions and biopharmaceutical companies conducting rare disease research
- References the Orphan Drug Act championed by Florida Representative Gus Bilirakis as having encouraged development of biopharmaceuticals for rare diseases
Legislative Description
Rare Disease Day
Last Action
Adopted by Publication
4/26/2023
Full Bill Text
No bill text available