FL H0115

Cited as the "Justo R. Cortes Progressive Supranuclear Palsy Act," the bill creates s. 381.991, F.S., requiring the State Surgeon General to establish a policy workgroup on progressive supranuclear palsy (PSP) and other neurodegenerative diseases, effective July 1, 2024.

The workgroup is tasked with identifying the number of Floridians diagnosed with PSP and other neurodegenerative diseases annually, assessing data collection methods, evaluating standards of care, identifying emerging treatments, and developing a risk surveillance system for health care providers.

The workgroup must develop policy recommendations on patient awareness, improved surveillance and detection in licensed health care facilities (hospitals, nursing homes, assisted living facilities, residential treatment facilities, and ambulatory surgical centers), and written notice to patients and families about increased diagnosis risks.

Membership includes health care providers, family members or caretakers of diagnosed patients, advocates, and other interested parties, with 2 members appointed by the Senate President and 2 by the House Speaker; members serve without compensation, and the State Surgeon General appoints the chair.

The State Surgeon General must submit annual reports with findings and recommendations to the Governor and Legislature, with a final report due by January 4, 2026.