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FL H7085
Bill
Status
Passed
6/3/2024
Primary Sponsor
Health & Human Services Committee
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AI Summary
- Creates the Sickle Cell Disease Research and Treatment Grant Program within the Florida Department of Health, administered by the Office of Minority Health and Health Equity, to fund community-based sickle cell disease medical treatment and research centers for workforce development, education, and establishing or supporting Centers of Excellence
- Caps administrative expenses for grant recipients at 5% of grant funds and allows unexpended appropriations from the General Revenue Fund to be carried forward for up to 5 years
- Requires the department to publicize fund availability and initiate a call for applications by July 15, 2024, and submit an annual report by March 1 to the Governor, legislative leaders, and State Surgeon General detailing project status, outcomes, costs, and program improvement recommendations
- Shifts the responsibility for notifying parents or guardians about sickle cell disease or trait screening results and genetic counseling availability from the newborn's primary care physician to the screening provider
- Expands the sickle cell registry beyond newborns and infants by allowing any Florida resident identified with sickle cell disease or sickle cell trait to voluntarily opt in, while maintaining the existing opt-out process for parents/guardians and individuals who turn 18
Legislative Description
Sickle Cell Disease
Last Action
Chapter No. 2024-225; companion bill(s) passed, see CS/CS/CS/SB 1582 (Ch. 2024-246)
6/3/2024
Full Bill Text
No bill text available