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FL H8023
Resolution
Status
Introduced
1/30/2024
Primary Sponsor
Adam Anderson
Click for details
AI Summary
- Recognizes August 10, 2024, as "Tay-Sachs Disease Awareness Day" in Florida
- Tay-Sachs disease is a genetic disorder caused by the absence of beta-hexosaminidase A (Hex A), resulting in progressive neurological disorders that often lead to death by age 4
- The carrier rate in the general population is 1 in 250 people, and a child has a 25 percent chance of having the disease when both parents are carriers
- There is currently no treatment or cure for Tay-Sachs disease, only symptom management
- Aims to increase awareness and education to support research into the gene mutation causing the disease and the pursuit of a cure
Legislative Description
Tay-Sachs Disease Awareness Day
Last Action
Adopted by Publication
2/29/2024
Full Bill Text
No bill text available