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FL H8039
Resolution
Status
Introduced
2/6/2024
Primary Sponsor
Adam Anderson
Click for details
AI Summary
- Recognizes February 29, 2024, as "Rare Disease Day" in Florida
- Nearly 7,000 rare diseases and conditions affect fewer than 200,000 Americans each, but collectively impact nearly 30 million Americans, 50 percent of whom are children
- The FDA has approved drugs and biologics for more than 1,000 rare disease indications, yet millions of Americans with rare diseases still have no approved treatment
- Florida established the Rare Disease Advisory Council in 2021 to give a voice to the nearly 1 in 10 Americans affected by a rare disease
- Acknowledges the Orphan Drug Act, championed by Florida Representative Gus Bilirakis, and notes that many leading academic institutions, biotech companies, and pharmaceutical companies are conducting rare disease research in Florida
Legislative Description
Rare Disease Day
Last Action
Adopted by Publication
2/29/2024
Full Bill Text
No bill text available